May 2009 > Day +83

Day +83

Sorry its been a week since we posted. We have not realy had a lot to post about, which is a good thing. Nick had his doctor appointment yesterday and is still doing well. He has been doing six hours per week of school instruction for the past few weeks.

The doctors are starting to mention us coming home. As long as he continues to do well, we should be home by the end of the month. His primary care would be transfered back to Akron Children's Hospital with a once a month visit back to Cincinnati. Once we get home, he will still be confined to our home with isolation from visitors, but it will sure make his and our life much easier.

They are going to do a Bone Marrow Aspiration sometime this week They want to check his new marrow to see how the cells are maturing. We have also asked them to remove his central lines. The central lines being in his chest increases the risk of infection. The draw back of having them removed is that he will have to be stuck a few times per week for blood draws and the IVIG that he still needs.

We will post again when we know the day he will have his aspiration and the line removed. Both are considered surgical procedures.

Thanks for checking in......
Posted: 5/16/2009 5:50:22 PM by Dan | with 225 comments
Comments
Nolan Luther
glad to hear your doing well nick keep it up.
5/16/2009 9:59:26 PM
Rosler's
Glad to see there is not a lot to report on! We will continue to pray for the uneventful healing to continue! Hang in there....home is just around the corner! Hugs ~ Barb, Vance, Leah, Ben, Lucas and Isaac
5/17/2009 8:43:52 AM
Dane Llewellyn
Hey Nick I hope you get to come home soon!
5/17/2009 10:03:26 AM
Haley B
I cannot wait until you come home!!! Stay Strong
5/17/2009 11:43:32 AM
Parslow's
Great news guys!!..keep fighting , cant wait to see you all get back home!
5/17/2009 12:17:23 PM
Mrs. Hilbish
Greetings from school! It is a bright spot in my day when I read about your progress. You are such a strong young man. Your family is pretty amazing too. Keep fighting hard. I look forward to reading more good news. My happy thoughts and prayers are still coming your way. God is Great!
5/18/2009 1:17:12 PM
Annette
Wow!! What a wonderful report! Sure hope things continue in this way. I will continue to lift all of you up to the Lord in my prayers, and am looking foreward to hearing that the bone marrow is maturing at a remarkable rate...just as Nick has been recovering. Nick; hang in there, buddy...the end of the month is just around the corner. I know you will still be restricted from much visitation when you return home, but I imagine you will be SO much more comfortable just being back in your own home! Hope you make it back for your birthday! If I remember right, it is the 23rd of the month. Wishing you all things bright and beautiful, and God's richest blessings. Still continuing to pray for the others there, as well. Have a wonderful evening, and may tomorrow find you just a bit closet to the end of this long battle!! Love in Christ, ~Annette
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All love that has not friendship for its base, is like a mansion built upon sand.
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[M]aybe the most any of us can expect of ourselves isn't perfection but progress.
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When your work speaks for itself, don't interrupt.
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The only thing that saves us from the bureaucracy is inefficiency. An efficient bureaucracy is the greatest threat to liberty.
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There is still a difference between something and nothing, but it is purely geometrical and there is nothing behind the geometry.
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Sometimes love will pick you up by the short hairs...and jerk the heck out of you.
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So many of our dreams at first seem impossible, then they seem improbable, and then, when we summon the will, they soon become inevitable.
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It is common sense to take a method and try it. If it fails, admit it frankly and try another. But above all, try something.
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It is not enough to do good; one must do it the right way.
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I've grown to realize the joy that comes from little victories is preferable to the fun that comes from ease and the pursuit of pleasure.
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He will always be a slave who does not know how to live upon a little.
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Things are only impossible until they're not.
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Learn to get in touch with the silence within yourself and know that everything in this life has a purpose.
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Funny business, a woman's career: the things you drop on the way up the ladder so you can move faster. You forget you'll need them again when you get back to being a woman. It's one career all females have in common, whether we like it or not: being a woman. Sooner or later, we've got to work at it, no matter how many other careers we've had or wanted.
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